Hello All

I'm not a frequent forum user but I have always found your advise sound and true. I have just spoken to my rheumy nurse, as my joints have flared and I feel really tired and wretched again
Story in bullet points
1 Dec 09 started Humira fortnightly MTX 15mg
2 Feb 10 Humira gave me back my life down to 3 mg Pred
3 end of May noticed Humira running out day 8 back up to 10mg pred
4 1st week of June Rheumy prescibed Humira weekly and go down weekly by 1mg on the pred
5 Felt fantastic again down to 3mg pred weekly Humira
6 Went on holiday to Caribbean (well I am travelgirl) another story how to take Humira and drugs with you)
7 Caught a bug at the end of first week dreadful runs but not sick it seemed to clear up then 2 days later of we went again.
8 Middle of second week cleared up felt better enjoyed the rest of our holiday.
9 we came back 25th July and since the 28th my joints have strted to ache and swell my feet dont even go down overnight, my wrist fingers and shoulders are joining in I think I'm having a proper 'Flare'
10 last week rheumy nurse said go back up to 10mg pred keep on weekly Humira and MTX take my anti inflams 75mg 2 a day slow release, I am also using 75mg Fentynal patches (not strong enough) so topping up with remedeine and oramorph so I also feel like a zombie.
11 I have again spoken to Rheumy nurse and she is going to speak to her husband The Rheumy. Hopefully they will come up with a plan, my next appointment is 1st Sept. By the way I had bloods done last week and the CRP was normal, so why are my joints feeling so bad.

I hope this hasn't made you all go to sleep but if anyone has any advise please impart it. I feel so frustrated I felt so good Humira changed my life 6 months ago and now I feel that I am going backwards again.

Thanks for reading this. It's made me feel better writing it. May your God bless you Tricia

Hi Tricia,

Sorry to hear things are so bad for you at the moment.
I take my humira every 12 days and this has been better than every 14 days but I do still get flares.
It could be that when the flare has gone you will be back to the humira working well, but there is also a chance it may be losing its effect. It's hard to tell what is happening till the flare settles down.
Hope you start to feel better soon.

Love, Doreen xx

Hi Tricia

I think your post was very good - well set out ! just sorry to hear you have had such a bad time, especially as you had been doing so well.

I am no expert on the Humira front, still on dmards at mo, but sure you will get lots of good advice.

Julia x

Hi Tricia,

Good to hear you are starting to feel better.
I would be interested to hear of your experience of travelling with humira.

Love, Doreen xx